“I am ready to not schedule my entire life around my IVIG treatment schedule,” I said. Every concert announcement, travel opportunity, or family gathering sent me to my IVIG calendar before I would commit.
Betty Ann has many gifts as well. No matter the challenge, she radiates positivity. She is the reason I continued with my blog, which led to writing my column, ‘LEMme Tell Ya.’
Then, I started writing. I wanted others with invisible illnesses to know they weren’t alone.
Every patient who is experiencing delays or has been denied treatment is asking themselves, “How quickly will my symptoms escalate?”
Emotional trauma is like a sword to the heart. It can’t be ignored.
Imagine reading about how life-changing a med is and not being able to have a doctor write it for you?
It was either take my meds and continue the date like normal or not take my meds and have difficulty walking back to my car.
What started as a way to rebuild my self-worth and to help others with invisible illnesses to advocate for themselves, literally has taken me to places I never imagined
A 5-hour round trip ride on the back of my friend’s Harley to the coast of Maine wouldn’t have been possible prior to IVIG. I had so much fun I made him take me for a longer ride the very next day!
This means that our invisible illness is now visible in the form of an FDA approved drug to treat our illness and give us our quality of life back.