“I am ready to not schedule my entire life around my IVIG treatment schedule,” I said. Every concert announcement, travel opportunity, or family gathering sent me to my IVIG calendar before I would commit.
Every patient who is experiencing delays or has been denied treatment is asking themselves, “How quickly will my symptoms escalate?”
What started as a way to rebuild my self-worth and to help others with invisible illnesses to advocate for themselves, literally has taken me to places I never imagined
A 5-hour round trip ride on the back of my friend’s Harley to the coast of Maine wouldn’t have been possible prior to IVIG. I had so much fun I made him take me for a longer ride the very next day!
Most surprisingly, my professional world and personal autoimmune battle have collided in a way that I never would have imagined.
“The one thing I’ve learned about friends is that the good ones are
rare.” Lauren Conrad
When battling autoimmune disease, or any other disease, the days that symptoms are minimal, must be enjoyed to the fullest! We must not forget to live.
A few weeks ago, at my monthly check in with my neurologist, we decided we needed to do one more MRI. I’d recently had some eye symptoms that were concerning. When all of my original neurological symptoms started over five years ago, the first thing my doctors considered was that Multiple Sclerosis, yet another autoimmune […]
Introducing The Battle Within to the BDN blog network!