“Free” med for the minority of rare disease patients was at a cost to the majority February 21, 2019Health#Autoimmunedisease, #Bernie Sanders, #berniesanders, #clinicalTrials, #coralgables, #FoodandDrugAdministration, #jacobusPharmaceuticals, #LambertEaton, #raredisease, #rarediseaseday, Catalystpharmaceuticals, FDA, Firdapse, LEMS, NORD, Spoonie By Dawn DeBois Imagine reading about how life-changing a med is and not being able to have a doctor write it for you?
My writing led to a destination I never imagined January 25, 2019Healthautoimmune, autoimmune disease, blogger, Catalyst, Clinical Trials, CMS, Congenital Myasthenia Syndromes, Coral Gables, Eastern Maine Neurology, FDA, Firdapse, Global Genes, Lambert Eaton Myasthenic Syndrome, Launch, LEMS, MG, Miami, MuSK MG, Myasthenia Gravis, Neurology, Neuromuscular, NORD, Pat McEnany, writer By Dawn DeBois What started as a way to rebuild my self-worth and to help others with invisible illnesses to advocate for themselves, literally has taken me to places I never imagined