It was either take my meds and continue the date like normal or not take my meds and have difficulty walking back to my car.
What started as a way to rebuild my self-worth and to help others with invisible illnesses to advocate for themselves, literally has taken me to places I never imagined
A 5-hour round trip ride on the back of my friend’s Harley to the coast of Maine wouldn’t have been possible prior to IVIG. I had so much fun I made him take me for a longer ride the very next day!
Most surprisingly, my professional world and personal autoimmune battle have collided in a way that I never would have imagined.
“The one thing I’ve learned about friends is that the good ones are
rare.” Lauren Conrad
After the last couple of weeks of being reminded that I do need to stay cool when temperatures soar, I will wait until December to take out my air conditioners next year.
When battling autoimmune disease, or any other disease, the days that symptoms are minimal, must be enjoyed to the fullest! We must not forget to live.
I have been told countless times that I have a great medical team managing all of the different aspects of my autoimmune battle. “Absolutely!” I say. However, it hasn’t always been the case. For decades, various symptoms were surfacing; but each symptom was being treated without looking deeper into possible reasons for all of them. […]
A few weeks ago, at my monthly check in with my neurologist, we decided we needed to do one more MRI. I’d recently had some eye symptoms that were concerning. When all of my original neurological symptoms started over five years ago, the first thing my doctors considered was that Multiple Sclerosis, yet another autoimmune […]
Finally, a diagnosis. You may have heard the name of which autoimmune disease your rheumy (a sweet nickname for Rheumatologist) told you. Chances are you have never heard of it before! You probably grabbed a pen and asked for them to spell it for you, too. I know I did. I still to this day […]