Thankful for you, my readers November 28, 2019HealthAdvocacy, autoimmune disease, blogging, invisible illness, thankful, thanksgiving By Dawn DeBois Then, I started writing. I wanted others with invisible illnesses to know they weren’t alone.
Thanks to IVIG, I can fully enjoy life again January 2, 2019HealthAdvocacy, autoimmune, autoimmune disease, Disability, Eaton Lambert Syndrome, Global Genes, IVIG, Lambert Eaton Myasthenic Syndrome, LEMS, Maine, NORD, rare disease, Rheumatology, Spoonie By Dawn DeBois A 5-hour round trip ride on the back of my friend’s Harley to the coast of Maine wouldn’t have been possible prior to IVIG. I had so much fun I made him take me for a longer ride the very next day!
When a drug for a rare disease gets FDA approval November 29, 2018Health#FoodandDrugAdministration, #globalgenes, #invisibleillness, #LambertEaton, #LEMS #FDA #Approval #raredisease #autoimmune #neuromuscular #Firdapse #, #trials, Advocacy, Catalystpharmaceuticals, Disability, Neurology, Spoonie By Dawn DeBois This means that our invisible illness is now visible in the form of an FDA approved drug to treat our illness and give us our quality of life back.
The RARE-est of friends August 28, 2018HealthAdvocacy, autoimmune, autoimmune disease, Catalyst, Eaton Lambert Syndrome, Friends, Global Genes, Lambert Eaton Myasthenic Syndrome, LEMS, Mesthania Gravis, Myasthenia, NORD, Patient Advocacy, rare, rare disease, RevengeoftheNerds, Spoonie By Dawn DeBois “The one thing I’ve learned about friends is that the good ones are rare.” Lauren Conrad