When a drug for a rare disease gets FDA approval November 29, 2018Health#FoodandDrugAdministration, #globalgenes, #invisibleillness, #LambertEaton, #LEMS #FDA #Approval #raredisease #autoimmune #neuromuscular #Firdapse #, #trials, Advocacy, Catalystpharmaceuticals, Disability, Neurology, Spoonie By Dawn DeBois This means that our invisible illness is now visible in the form of an FDA approved drug to treat our illness and give us our quality of life back.
When worlds collide November 5, 2018Healthautoimmune, autoimmune disease, blogger, bloggers, Catching Health, Diane Atwood, Eaton Lambert Syndrome, Fibro, Fibromyalgia, goal, Hashimotos Thyroiditis, In Real Life, IRL, Jackie Conn, Lambert Eaton Myasthenic Syndrome, LEMS, lifetime, Maine, NORD, personal life, Portland, professional life, rare disease, rheumatologist, See you lighter, Spoonie, work life balance, WW, WW Coach, WW Guide, WWMaine By Dawn DeBois Most surprisingly, my professional world and personal autoimmune battle have collided in a way that I never would have imagined.